Living with a hidden (not so hidden) illness…Part 2

So here I am almost a year after writing part 1. I thought it was about high time that I updated everyone with my situation as a lot has happened over the last year!

So back in the beginning of the year, I had just had enough of waiting and so I made another appointment with my GP to chase what was happening. I finally found a GP who took my case seriously and chased it up for me straight away.

Fast forward a couple months and here I was waiting at the hospital for my first appointment in almost 2 years! I knew that I wasn’t going to be seeing the same specialist as last time which made me a bit nervous. However, the second I met my new doctor, that anxiety went away. I explained my case to him and he was upset to hear that my case had ‘slipped through the cracks’ for so long.

Well this is where it all changed for me. Normally these appointments only last about 10 minutes and I tend to come out of them still as confused about what is happening than when I went in. Well this time, the specialist took a long time to really understand my situation and to update the notes on the system to include as much detail as possible. He took the time to really explain to me what was happening inside my body and what my options were. Well, lack there of. He called in the head of department and between the two of them, they fully discussed my situation with me and put me at ease.

After a quick feel of my abdomen, they noted very quickly that unfortunately my fibroids and my uterus had hardened meaning my only option was for surgery. And not just a small surgery which we had all hoped for…but quite a serious one. My fibroids had hardened at 15x15cm. This meant that my uterus had grown to the size of 7 month pregnancy. All of these factors meant that the surgery incision would have to be a midline incision from above my belly button…all the way down. They tried to put me at ease saying that I should get an anchor tattoo afterwards to hide the scar and something that is fitting with me.

After about 5 minutes of laughing and coming up with ideas…they sat me down and talked me through the procedure and the recovery time. This was the bit I was most afraid of. When the doctor starts the sentence with ‘There is one more thing and some women think that this is outrageous…’ my mind instantly fills in the blanks. I knew a hysterectomy could be on the cards for me. I had been previously told that the risk was extremely high considering my situation. However my chance was actually at less than 1%!!!! AND the chance of having kids afterwards would be high! So not only would I be getting my life back, but my chance of having kids wasn’t completely ripped away from me!

45 minutes later I finally left the hospital knowing exactly what the plan of action was. And here we are…less than a month away from my operation. Yes my anxiety plays up from time to time thinking of all the ‘what ifs’ but I am just going to take it one day at a time.

First things first…I have a lovely trip away with my mum for a well deserved holiday (for mum) and a great distraction for me! See you on the other side!!

One thought on “Living with a hidden (not so hidden) illness…Part 2

  1. Abbey September 20, 2018 / 4:24 pm

    ❤️❤️ love you girlie ❤️here every step of the way for you! Xx

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